HREC Project number: HRE2019-0001
Project Title: Assessment of Functioning Practices for Neurodevelopmental Conditions In AustraliaChief Investigator: Professor Sonya GirdlerStudent Researcher: Ms Emily D'ArcyVersion Number: 1Version Date: 28/10/2019What is the Project About? Who is doing the Research? Why am I being asked to take part and what will I have to do? Are there any benefits to being in the research project? Are there any risks, side-effects, discomforts or inconveniences from being in the research project? Who will have access to my information? Will you tell me the results of the research? Do I have to take part in the research project? What happens next and who can I contact about the research?
Do you agree with the above statements and consent to complete this survey?* must provide value
Yes No
Are you interested in being contacted about similar research projects in the future?* must provide value
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If you are interested in being contacted about similar projects, please provide you email below:
Please select your gender* must provide value
Male
Female
Other
If other, please describe:
Please type your age in years* must provide value
Please select your highest level of education:* must provide value
Bachelor's degree
Graduate certificate/diploma
Master's degree
Doctorate degree (PhD, MD etc)
Other
If other, please describe:
Please select your profession/professional background:* must provide value
Medical practitioner
Nurse
Occupational therapist
Psychologist
Social Worker
Speech Pathologist
Other
If other, please describe:
How many years of experience do you have working with individuals with neurodevelopmental conditions?* must provide value
What is your sector of employment?* must provide value
Private Practice
Not-for-profit organisation
Government sector - health
Government sector - disability
Government sector - education
Other
If other, please describe:
What is the postcode of your primary place of practice?* must provide value
What population areas do you provide services for? Metropolitan
Regional
Remote
What service delivery methods do you use?* must provide value
Inpatient appointments (hospital setting)
Clinic appointments
Community visits (home/school visits)
Teletherapy
Other
Other, please describe:
Please select all the neurodevelopmental disability groups you primarily work with:
For the purposes of this study "neurodevelopmental condition" is used to refer to neurodevelopmental disorders (as included in the DSM-5), or conditions of a neurological nature that occur during prenatal postnatal development. This includes developmental delay and global developmental delay.
* must provide value
Autism (ASD, Asperger's etc)
ADHD
Cerebral Palsy
Global Developmental Delay
Intellectual Disability
Other
If other, please describe:
Please indicate the youngest age of clients you work with (in years)
Please indicate the oldest age of clients you work with (in years)* must provide value
For the purposes of this research, "Assessment of Functioning" refers to an assessment that seeks to understand an individual's level of functioning and needs in order to support their full participation in society. This includes assessments that may be more commonly known as "adaptive behaviour" or "occupational performance" assessments.
Do you complete assessments of functioning?* must provide value
Yes
No
How often do you complete assessments of functioning?* must provide value
Everyday
Several times per week
At least once per week
At least once per fortnight
At least once per month
Every few months
For what purpose to you complete an assessment of functioning?* must provide value
To aid diagnosis/as part of a diagnostic process
Screening purposes
Goal-setting/guide intervention
To evaluate change from intervention
To determine funding eligibility
Other, please describe
Other, please describe
If you assess another concept in your assessments of functioning for individuals with NDCs, please describe below and indicate how often you assess it:
What funding source is used for your assessments of functioning for individuals with NDCs?* must provide value
NDIS
Disability Services (not NDIS) (e.g. Better Start)
Privately Funded
Medicare
Education Department
Other, please describe
Other, please describe
When completing an assessment of functioning for an individual with a NDC do you:* must provide value
Always complete as an individual clinician
Complete with another discipline, when needed
Always complete with another discipline
Complete as part of a multidisciplinary team (more than two disciplines), when needed
Always complete as part of a multidisciplinary (more than two disciplines) team
How much time (in hours) do you spend, on average, completing an assessment of functioning for an individual with a NDC?* must provide value
1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 20+
If completed by multiple clinicians, how much time (in hours) would it take, per clinician, to complete an assessment of functioning for an individual with a NDC? 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 20+
After completing an assessment of functioning, how much additional time (in hours) is required for writing the assessment of functioning report for an individual with a NDC?* must provide value
< 1 1 2 3 4 5 6 7 8 9 10 10+
What contexts do you use to complete an assessment of functioning for an individual with an NDC?* must provide value
Client's home environment
Education or day-care setting
Clinic setting
Place of employment
Other, please describe
If other, please describe:
What methods do you use to collect information to complete an assessment of functioning for an individual with a NDC?* must provide value
Observations
Interview (not an established assessment)
In-house assessment tools/interview guides
Structured but non-standardised assessments
Standardised assessments
File Review
Communication with other professionals familiar with the individual
Other, please describe
If other, please describe:
On average, how many assessment tools would you use for one assessment of functioning for an individual with a NDC? * must provide value
What other structured and/or standardised assessment tools do you use to complete assessments of functioning?
Do you use a theoretical framework to guide your assessments of functioning, and if so, which?(e.g. International Classification of Functioning, Disability and Health (ICF), Model of Human Occupation (MOHO), Canadian Model of Occupational Performance and Engagement (CMOP-E))
* must provide value
How well do you understand the best practice of assessment of functioning practices?(e.g. as defined in the National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorders which can be accessed here: https://www.autismcrc.com.au/knowledge-centre/resource/national-guideline )
* must provide value
Very well
Well
Satisfactory
Not Well
Not at all
I don't know
How would you rate your assessment of functioning practices compared to best practice?* must provide value
Very good
Good
Satisfactory
Bad
Very bad
How would you rate the general standard of assessment of functioning practice compared to best practice?* must provide value
Very good
Good
Satisfactory
Bad
Very bad
Do you have any other comments about assessment of functioning practices compared to best practice? If so, please describe below.
What barriers exist for you personally to completing assessments of functioning in line with best practice?
* must provide value
Lack of time
Lack of resources/access to appropriate assessment of functioning tools
Lack of resources/access to appropriate professional development and training
Large caseload
Unsure of what best practice is
Limited skills in evaluating research literature
Lack of practice guidelines (wider community)
Lack of practice guidelines (within the workplace)
Other, please describe
Other, please describe
What barriers exist in general to completing assessments of functioning in line with best practice?
* must provide value
Lack of time
Lack of resources/access to appropriate assessment of functioning tools
Lack of resources/access to appropriate professional development and training
Large caseload
Unsure of what best practice is
Limited skills in evaluating research literature
Lack of practice guidelines (wider community)
Lack of practice guidelines (within the workplace)
Other, please describe
Other, please describe
What facilitators exist for you personally to completing assessments of functioning in line with best practice?
* must provide value
Sufficient time
Availability of resources/access to appropriate assessment of functioning tools
Availablity of resources/access to appropriate professional development and training
Appropriate caseload
Clear picture of what best practice is
Skills in evaluating research literature
Availability of practice guidelines (wider community)
Availability of practice guidelines (within the workplace)
Other, please describe
Other, please describe
What facilitators exist in general to completing assessments of functioning in line with best practice?
* must provide value
Sufficient time
Availability of resources/access to appropriate assessment of functioning tools
Availablity of resources/access to appropriate professional development and training
Appropriate caseload
Clear picture of what best practice is
Skills in evaluating research literature
Availability of practice guidelines (wider community)
Availability of practice guidelines (within the workplace)
Other, please describe
Other, please describe
Please feel free to add any extra comments about assessment of functioning practices
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